Stroke: Com­mu­nity Resources — A Care­givers Guide

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Care­giver Resources

This pam­phlet is a guide to com­mu­nity resources for care­givers of stroke sur­vivors. This guide does not list all the avail­able resources. It is intended as a start­ing point. Its pur­pose is to give you an idea about some of the resources and ser­vices avail­able in the community.

  • If your fam­ily mem­ber is admit­ted to a reha­bil­i­ta­tion cen­ter in the course of their recov­ery, make sure to inform your­self about resources that may be offered at the cen­ter for patients or caregivers.
  • Please note that some ser­vices that are pre­sented here may not be applic­a­ble to your needs.
  • Please note that The MUHC Stroke Team does not endorse any of these orga­ni­za­tions or companies.
  • In this text, the terms ‘fam­ily mem­ber’ and ‘loved one’ are used inter­change­ably. Both terms are used to iden­tify a stroke sur­vivor (whether a fam­ily mem­ber or a friend) for whom you are the main care­giver. This is done for rea­sons of sim­plic­ity and clarity.

{mospage­break title=Tips for Caregivers}

1. Tips For Caregivers

  • Many peo­ple describe care­giv­ing as a reward­ing expe­ri­ence. Care­givers are an impor­tant part of the stroke recov­ery process. Many care­givers take pride in their abil­ity to take on the role of care­giv­ing. And many care­givers rec­og­nize and cher­ish the close rela­tion­ship they develop with their loved one. How­ever, care­giv­ing is an adjust­ment. Aspects of care­giv­ing can be stress­ful and over­whelm­ing. To help make the expe­ri­ence more pos­i­tive, here are some tips just for you!

Take care of yourself

In order to be able to care for your loved one, you need to be able to care for yourself.

  • Live a healthy lifestyle by eat­ing nutri­tious meals, get­ting suf­fi­cient sleep and exercising.
  • It is nor­mal, at times, to feel guilty, angry and impa­tient. Try to dis­cuss your feel­ings with someone.
  • Use relax­ation tech­niques like lis­ten­ing to com­fort­ing music or meditation.
  • Keep up with your own med­ical appointments.
  • Research has shown that being in the role of a care­giver may lead to depres­sion. Visit a health care pro­fes­sional if you feel that this is hap­pen­ing to you.
  • Have real­is­tic expec­ta­tions of your­self, your loved one and the health care system.

Seek sup­port

Tak­ing care of your loved one can be dif­fi­cult. Here is how you can get some support.

  • Think about join­ing a sup­port group. Hav­ing con­tact with oth­ers liv­ing a sim­i­lar expe­ri­ence may help you feel that you are not alone.
  • Look to fam­ily as well as friends for support.
  • Peo­ple often want to help but do not know what to do. Make a list of spe­cific things that they can do and sug­gest these to them.

Edu­cate yourself

Empower your­self by learn­ing about your loved one’s condition.

  • Ask many questions.
  • Infor­ma­tion can aid in pre­vent­ing unre­al­is­tic expectations.

Take time out

Every­one deserves and needs time to them­selves.

  • Sched­ule time to take breaks and enjoy yourself.
  • Remem­ber to laugh.
  • Do not for­get about your per­sonal needs.

Time man­age­ment

Time man­age­ment skills are essen­tial. Here is where you can start.

  • Set Lim­its. Be hon­est with your own lim­its. You can­not take on more than you can handle.
  • Learn to say ‘no’.
  • Set pri­or­i­ties and pace yourself.

{mospage­break title=Accessing Resources}

2. Access­ing Resources

2.1 C.L.S.C

How can you con­tact your local C.L.S.C.?
One of the most use­ful com­mu­nity resources that you have access to is your local C.L.S.C. It is impor­tant to make your­self known to your local C.L.S.C. and find out what they can offer you. If you do not know which C.L.S.C. you are asso­ci­ated with, please call the fol­low­ing num­ber to find out: (514) 9311448.

When you call your local C.L.S.C., you may want to inform your­self about respite care. Respite care involves the pro­vi­sion of care for your fam­ily mem­ber, in turn giv­ing you the oppor­tu­nity to take a break. “Respite” refers to short term, tem­po­rary care. One of the impor­tant pur­poses of respite care is to give fam­ily mem­bers time away and tem­porar­ily relieve the stress they may expe­ri­ence while pro­vid­ing care for their loved one. Depend­ing on the spe­cific ser­vices offered at your C.L.S.C. and the health sta­tus of your fam­ily mem­ber, some­one may be able to come into your home for part of the day and care for your loved one. The C.L.S.C. may also arrange for you to drop off your fam­ily mem­ber at a cen­ter where they will be look after for a period of time. This may be in the form of day cen­ters, which pro­vide main­te­nance pro­grams. This would allow you to have some time to take care of your­self or catch up with other impor­tant aspects of your life.

Tem­po­rary respite beds are also avail­able. Respite beds are hos­pi­tal beds where your loved one can be admit­ted for a period of time. Some restric­tions may apply and some ser­vices may entail fees. Please make your needs known to your local C.L.S.C. and inform your­self about the avail­able services.

2.2 Med­ical Emergencies

For all med­ical emer­gen­cies and seri­ous health prob­lems call 911 or go to the emer­gency room at the near­est hos­pi­tal or clinic.

2.3 Gen­eral Med­ical or Social Concerns

For non-​emergency med­ical or social con­cerns you may call your local C.L.S.C. or 5149311448 and they will con­nect you with InfoS­anté. A nurse or social worker is on staff at any time day or night to answer your ques­tions, to give you advice, or to guide you to the appro­pri­ate resources.

2.4 Com­mu­ni­ca­tion Disorders

What if your loved one has dif­fi­cul­ties com­mu­ni­cat­ing or is aphasic?

Asso­ci­a­tion québé­coise des Per­son­nes Aphasiques (AQPA)
Tel. (514) 2775678
Web page: http://​www​.aphasie​.qc​.ca/

  • For the moment, ser­vices are pro­vided only in French
  • Offers a vari­ety of work­shops for stroke sur­vivors from Mon­day– Wednesday
  • Cof­fee shop on Tues­day is a good oppor­tu­nity for care­givers and stroke sur­vivors to social­ize with others
  • Can call to ask ques­tions regard­ing aphasia
  • Will pro­vide doc­u­men­ta­tion by mail e.g. some infor­ma­tional pam­phlets (free of charge) and “Apha­sia infor­ma­tion book­lets” (prices range from $5.00 to $22.00 depend­ing on the booklet)
  • $20 for a one year mem­ber­ship gives you access to all the services

2.5 Swal­low­ing Problems

What if your loved one has swal­low­ing prob­lems?
Insti­tut Uni­ver­si­taire de Géri­a­trie de Mon­tréal can pro­vide follow-​up in their swal­low­ing clinic. This ser­vice is cov­ered by medicare. A refer­ral must be signed by your loved one’s physi­cian. An appoint­ment can be obtained by con­tact­ing Francine Belisle, team coor­di­na­tor at 3402800, ext. 3007. There is a 12 month wait­ing list.

CLSCs have reg­is­tered dieti­cians who can pro­vide assis­tance in meal plan­ning and preparation.

2.6 Home Care

Are there pro­fes­sion­als that you can access to pro­vide care at home?
For those who have the finan­cial means to access these resources, here are 3 ser­vice providers that you can con­tact for home assistance:

Le Groupe Santé Brunet
(514) 6307450

Paraide
(514) 7351756

We Care
(514) 9334141

Coupe de Baliene
(514) 4844266

Depend­ing on the nature of your need(s), they offer:

  • Ser­vices from reg­is­tered nurses, reg­is­tered nurs­ing assis­tants, home­mak­ers, and other individuals
  • Help with meals, clean­ing, or maybe to sim­ply offer companionship
  • Ser­vices for the Island of Mon­treal and sub­urbs, and pos­si­bly other locations

2.7 Sup­port

Where can you find support?

  • Are you look­ing for a re-​integration cen­ter for your loved-​one?
  • Are look­ing for a place to meet and talk to other caregivers?

The fol­low­ing list of Activ­ity Cen­tres, Sup­port Groups, and Senior Cen­tres may be for you:

Cen­tre D’Action Bénév­ole et Com­mu­nau­taire Saint-​Laurent Inc.
Tel.: (514) 7445511

  • Offer ‘respite-​days’ where you can drop off your loved one for part of the day at the com­mu­nity cen­ter and take time for your­self (restric­tions apply as to who can have access to this service)

Stroke club Cen­tre D’intégration à la Vie Active (C.I.V.A.)
Tel.: (514) 9351109

  • Classes for apha­sic indi­vid­u­als on Mon­days and Wednes­days (only offered in French)
  • Offer var­i­ous paint­ing and draw­ing courses
  • $25 for a one year mem­ber­ship (does not cover the costs of all services)

C.L.S.C. René-​Cassin
Tel.: (514) 4889163

  • Offer a vari­ety of ser­vices for care­givers such as a care­giver lounge where infor­ma­tion can be accessed or where you can meet other care­givers liv­ing sim­i­lar expe­ri­ences (for res­i­dents of Côte St-​Luc, Hamp­stead, and Snowdon-​West)
  • Hold a yearly one-​half day con­fer­ence designed specif­i­cally for care­givers. This is open to all care­givers, regard­less of where you live. You can tele­phone ahead to be placed on their mail­ing list for the conference.

Cum­mings Jew­ish Cen­tre for Seniors
Tel.: (514) 9316942 (Audrey McGre­gor)
Web page: http://​www​.golden​-age​.org/

  • Cen­tre con­sti­tutes the merger of the Golden Age Asso­ci­a­tion and the Jew­ish Sup­port Ser­vices for the Elderly
  • Can access var­i­ous ser­vices for senior adults. For exam­ple, they pro­vide con­sul­ta­tions that can be used to help you and your loved one cre­ate indi­vid­u­al­ized care plans based on your needs. The Cen­tre also offers spe­cialty clin­ics with exper­tise in legal assis­tance and income tax.
  • $30 for a yearly membership

Jew­ish Gen­eral Hos­pi­tal Stroke Club
Tel.: (514) 9329674

A unique, non-​profit, vol­un­teer group to help peo­ple who have had a stroke. It is guided by the Jew­ish Gen­eral Hos­pi­tal stroke team.

  • The Club has 70 mem­bers, 20 of whom are ded­i­cated vol­un­teers. The Club meets Wednes­day morn­ings from 9 a.m. to 1 p.m. at the Tem­ple Emanu-​El-​Beth Sholom.
  • There is no mem­ber­ship fee. Trans­porta­tion can be arranged through the MUCTC ser­vice for handicapped.

West Island Com­mu­nity Resource Cen­tre
Tel.: (514) 6946404

  • Can help you locate: care­giv­ing ser­vices, social sup­port and ser­vices, self-​help groups and more

Home Care Assis­tance Montreal

Web Page: https://​www​.home​car​e​as​sis​tance​mon​treal​.ca/​l​i​v​e​-​i​n​.​h​t​m​l

  • Pro­vides infor­ma­tion to care­givers about resources in the area, about your rights as a caregiver
  • Writ­ten infor­ma­tion in French

West Island Women’s Cen­tre
Tel.: (514) 6958529

  • Hold sup­port groups for women – 8-​week sessions
  • Top­ics change with each group – tele­phone to see if the topic would meet your needs
  • Offered in English

2.8 Vol­un­teer Centres

Cen­tre Bénévolat de Mon­tréal
Tel.: (514) 8423351

Bénév­oles de l’Est
Tel.: (514) 5236599

Cen­tre Bénévolat NDG
Tel.: (514) 4890588

Cen­tre Bénévolat St-​Laurent
Tel.: (514) 7445511

Ser­vices Bénév­oles Entre-​Aide Anjou
Tel.: (514) 3512517

Meals-​on-​Wheels and other vol­un­teer ser­vices, includ­ing trans­porta­tion ser­vices. Restric­tions and con­di­tions for trans­port vary depend­ing on the cen­ter. Prices vary and cer­tain restric­tions apply.

{mospage­break title=3. Have you thought about the following?}

3. Have you thought about the following?

3.1 Trans­porta­tion

Do you need help with transportation?

Trans­port Adapté (S.T.C.U.M.)
Tel.: (514) 2805341

  • Door-​to-​door trans­porta­tion for peo­ple with long-​tem dis­abil­ity to med­ical appoint­ments as well as for social out­ings and for run­ning errands
  • Offer taxi and mini-​bus ser­vices depend­ing on the individual’s need
  • Costs are $1.25 (65+) or $2.25 each way
  • Call to receive an admission’s form, which will be reviewed within 1.5 months by the admis­sion committee

Medicar 2000 (or Aid­bus)
Tel.: (514) 7663342

  • Trans­porta­tion ser­vices avail­able to all individuals
  • All trips costs a min­i­mum of $40 plus $1.75/km. + taxes

NDG/​Montreal West Senior Cit­i­zens Coun­cil
Tel.: (514) 4871311

  • Trans­porta­tion ser­vices for med­ical appointments

3.2 Med­icAlert

Do you need a Med­icAlert bracelet or chain?
The Cana­dian Med­icAlert Foun­da­tion pro­vides a range of prod­ucts (bracelets and so on) which make med­ical needs and per­sonal requests avail­able in the event of an emergency.

Mon­treal (514) 8757466
Eng­lish– 18006681507
French– 18006686381

Web site: https://​www​.med​icalert​.ca/

3.3 Life­line

Do you need a Lifeline?

Life­line offers mon­i­tor­ing ser­vices and prod­ucts to peo­ple who want the assur­ance of 24-​hour assistance.

Con­tact the Royal Vic­to­ria Rotary Life­line
Tel.: (514) 8431670

3.4 Den­tal Care

Are look­ing for a den­tal clinic that is wheel­chair accessible?

Papineau-​Bélanger Den­tal Clinic
Tel.: (514) 7216006

NDG/​Westmount Den­tal Clinic Queen Eliz­a­beth health Com­plex
Tel.: (514) 3691999

3.5 Equip­ment for the Disabled

Actimed Tel.:
(514) 7470977

  • Pur­chase or rent a wheelchair

Amedico Inc.
Tel.: (514) 7228220

  • Can pur­chase dia­pers, PK’s, Ensure

R.C.L. Québec
Tel.: (514) 8663689

  • Ser­vices offered to those with low incomes, phys­i­cally dis­abled, and 18+
  • Will loan walk­ers, wheelchairs

3.6 Home Adaptations

Do you want to adapt your home for a per­son with a phys­i­cal disability?

Adaptech
Tel.: (514) 8901524

  • Will eval­u­ate your home envi­ron­ment and adapt it for your var­i­ous needs
  • Can install slid­ing shelves in your kitchen or add han­dles in the bath tub
  • Pre­dom­i­nantly ser­vices the island of Montreal

3.7 Vehi­cle adaptations

Do you want to adapt your vehi­cle for a phys­i­cally dis­abled person?

Van-​Action Tel.:
(514) 3425000

3.8 Income Tax Credits

Do you need infor­ma­tion on how to claim tax credits?

There are non-​refundable tax cred­its avail­able to you as care­givers that are worth inquir­ing about. These include deduc­tions for med­ical expenses and sup­plies, a care­giver credit, and also a credit for your fam­ily mem­ber with a long-​term phys­i­cal or men­tal dis­abil­ity. Call the income tax office or an accoun­tant for fur­ther information.

Rev­enue Québec (514) 8732600
Rev­enue Canada 18009598251

3.9 Cloth­ing

Are you look­ing for adapted cloth­ing for some­one who is disabled?

Créa­tion Con­fort
(514) 7286889

  • Can pur­chase ‘hospital-​like gowns’, pants, and more

3.10 Gro­ceries

Do you need assis­tance with gro­ceries? Did you think of ask­ing your local super­mar­ket if they can deliver groceries?

  • When call­ing, ask about deliv­ery hours, pos­si­ble min­i­mum pur­chase, and whether tele­phone orders are accepted.

{mospage­break title=4. Infor­ma­tion About Stroke and Caregiving}

4. Infor­ma­tion About Stroke and Caregiving

Heart and Stroke Foun­da­tion of Que­bec
Tel.: (514) 8711551
18005678563
Web page: http://​www​.heartand​stroke​.ca/

  • Good resource for pro­vid­ing information
  • Can call to receive some free pamphlets
  • Can also pur­chase books such as the Cana­dian Fam­ily Guide to Stroke which focuses on stroke pre­ven­tion, treat­ment, and recov­ery ($22 plus tax and ship­ping charges)

Doc­u­men­ta­tion Cen­tre for Per­sons with Dis­abil­i­ties
Office des per­son­nes hand­i­capées du Québec Cen­tre de doc­u­men­ta­tion
Tel : (514) 8733905 (Mon­treal)
tel : 18005671465 (head office, Drum­mondville)
Web page: http://​www​.ophq​.gouv​.qc​.ca/

  • Col­lec­tion cov­ers infor­ma­tion on diag­no­sis and treat­ment; reha­bil­i­ta­tion; edu­ca­tion; home care; fam­ily sup­port; trans­porta­tion, recre­ation; asso­ci­a­tions, and more.

Neuro-​Patient Resource Cen­tre Mon­treal Neu­ro­log­i­cal Hos­pi­tal
Tel.: (514) 3985358
Web page: http://​www​.infoneuro​.mcgill​.ca/

  • Will sug­gest books that may be bor­rowed or con­sulted on site
  • Pro­vide inter­net searches on your topic of interest

Le Regroupe­ment des Aidantes et Aidants Naturel(le)s de Mon­tréal
Tel: (514) 374 1056
Fax: (514) 374 3040
Email: info@​raanm.​net
Web Site: http://​raanm​.net/

  • Offers a tele­phone lis­ten­ing ser­vice, sup­port groups, and information.

{mospage­break title=5. Web­sites About Stroke}

5. Web­sites About Stroke

Heart and Stroke Foun­da­tion of Canada
http://​www​.heartand​stroke​.ca/

  • Choose between a French or an Eng­lish website
  • Order your free newslet­ter for stroke sur­vivors and caregivers
  • Pro­vides a link to the Que­bec Heart and Stroke Foundation

National Stroke Asso­ci­a­tion (NSA)
http://​www​.stroke​.org/

Will answer ques­tions such as: What is a stroke? Are there dif­fer­ent types of strokes? How is a stroke treated?

Amer­i­can Stroke Asso­ci­a­tion
http://​www​.stroke​as​so​ci​a​tion​.org/

  • Pro­vides infor­ma­tion about stroke and high­lights the lat­est research
  • Offers infor­ma­tion about a free mag­a­zine enti­tled “Stroke Con­nec­tion” that pub­lishes infor­ma­tion about stroke and fam­ily caregiving

Amer­i­can Heart Asso­ci­a­tion
https://​www​.heart​.org/​H​E​A​R​T​O​R​G​/

  • Pro­vides tips for healthy cooking
  • Can search through the Heart & Stroke Encyclopedia
  • Offers a quick link to the Amer­i­can Stroke Asso­ci­a­tion website

{mospage­break title=6. Web­sites About Caregiving}

6. Web­sites About Caregiving

Care­giver Net­work
http://​www​.care​giver​.on​.ca/

  • Pro­vides tips on car­ing for yourself
  • about finan­cial and legal aspects

Fam­ily Care­giver Alliance
http://​www​.care​giver​.org/

  • Infor­ma­tion about caregiving
  • Online sup­port groups

Care­giver Action Network

http://​care​giver​ac​tion​.org/

  • Infor­ma­tion about caregiving
  • Pro­vides infor­ma­tion on resources and ser­vices for caregivers

Le Regroupe­ment des Aidantes et Aidants Naturel(le)s de Mon­tréal http://​raanm​.net/


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