The SLA con­fer­ences and activ­i­ties for August 2019

The ALS Soci­ety of Quebec’s monthly newsletter

August 5th : Mon­treal – For care­givers only

Time :

6pm to 8pm

Loca­tion :

Nova West Island, 447, Bea­cons­field Blvd., in Bea­cons­field H9W 4C2

Reg­is­tra­tion :

Viviane Schami at 514 6958335, ext. 209 or This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.

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August 20th : Saint-​Hubert — For peo­ple with ALS and caregivers

Time :

1:30pm to 3:30pm*

*You are wel­come to join us at 1:00pm for a bit of social time

Loca­tion :

Cen­tre mon­térégien de réadap­ta­tion*, 5300 ch. Cham­bly, St-​Hubert J3Y 3N7

Rooms: Mon­térégie and Longueuil

*Please note that there is a park­ing fee of $3 at the CMR. For more infor­ma­tion, please do not hes­i­tate to con­tact us.

Reg­is­tra­tion :

Nadine at 514 7252653, ext. : 106 or This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.

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August 28th : Mon­treal– For peo­ple with ALS and caregivers

Do you wish to dis­cuss, learn, or share with oth­ers going through the same thing as you are? Join us for a sup­port group, for peo­ple liv­ing with ALS or for care­givers; both groups will be held simul­ta­ne­ously in the same loca­tion. The group will be held in French and/​or Eng­lish, depend­ing on the pref­er­ences of those who register.

Time :

6:30pm to 8:30pm

Loca­tion :

The ALS Soci­ety Office, 5415, rue Paré, Suite 200, Mont-​Royal H4P 1P7

Reg­is­tra­tion :

Nadine at 514 7252653, ext. : 106 or This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.

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August 8th : Adapted sail­ing
and med­i­ta­tion session

The ALS Soci­ety invites mem­bers to par­take in an adapted sail­ing expe­ri­ence at the Pointe-​Claire Yacht club. This activ­ity is *reserved exclu­sively for mem­bers with ALS* and it is manda­tory for mem­bers to be accom­pa­nied by a care­giver. Dur­ing the sail­ing expe­di­tion, mem­bers will be accom­pa­nied in the sail­ing boat by a licensed sailor (dura­tion of 60 min). Care­givers can­not accom­pany mem­bers in the sailboat.

Please bring your lunch onsite. Bev­er­ages and snacks will be served.

**Please note that even if you do not want to sail you are still wel­come to join us and spend the day at the park near the yacht club. A mind­ful and med­i­ta­tive expe­ri­ence will be offered in the morn­ing and afternoon.

If it rains or weather is unfa­vor­able for sail­ing the activ­ity will be can­celled and resched­uled. Please reserve as soon as pos­si­ble as space is lim­ited to 8 spots!

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Clin­i­cal tri­als — recruit­ing now!

The Bio­gen 245AS101 clin­i­cal trial of an anti­sense oligonu­cleotide ther­apy will be accept­ing another group of patients as of August 1st. Patients must have a con­firmed C9orf72 muta­tion and symp­toms of ALS in order to participate.

To learn more and see if you could be a poten­tial clin­i­cal trial can­di­date, please con­tact Kris­tiana Salmon at 5143981779 or This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it..

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August 13 – Learn­ing to live with ALS :

Han­dling emotions

When diag­nosed with ALS, many afflicted per­sons and their fam­i­lies develop dif­fer­ent emo­tional responses in han­dling fear, anger, guilt, grief and regret etc. This sem­i­nar aims at cre­at­ing a forum for pre­sent­ing key areas that are emo­tion­ally affected when peo­ple are diag­nosed with a dis­ease like ALS and pro­vides an oppor­tu­nity for the afflicted per­sons and care­givers to dis­cuss the strate­gies that they use to nav­i­gate their emo­tions. These options can be very help­ful in improv­ing the qual­ity of life for both the afflicted per­son and the caregiver.

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Fundrais­ing activ­i­ties orga­nized by
the ALS community

It is thanks to fundrais­ing inia­tives orga­nized within our com­mu­nity that we can pro­vide per­son­al­ized ser­vices to fam­i­lies touched by ALS across the province. Gather your fam­ily and friends and sup­port fundrais­ing activ­i­ties in your region!

Sep­tem­ber 22nd – Ever­est Challenge

The Ever­est Chal­lenge is a non-​profit orga­ni­za­tion ded­i­cated to improv­ing and main­tain­ing a good phys­i­cal con­di­tion and help­ing oth­ers through mutual aid and gen­eros­ity. The event, cre­ated by Yvan L’Heureux, has been a suc­cess since its first edi­tion in 2013 at the côte St-​Pierre in Rivière-​du-​Loup. Today, other cities in Que­bec host this flag­ship event. Since the begin­ning, more than 6,000 climbers from 3 to 85 years old, about 50% of whom were seden­tary before, have climbed the côte St-​Pierre. The chal­lenge sup­ports 230 orga­ni­za­tions through­out Que­bec, includ­ing the ALS Soci­ety of Que­bec and $ 750,000 in ben­e­fits for the communities.

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Octo­ber 1213 – Bromont Ultra

The Bromont Ultra is a race where par­tic­i­pants are encour­aged to sur­pass them­selves not only phys­i­cally but also in phil­an­thropy. This is the first event of this kind in Que­bec. Fif­teen to twenty orga­ni­za­tions are sup­ported by the chal­lenge this year, includ­ing the ALS Soci­ety of Quebec.

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ALS Soci­ety of Quebec’s events

Walks to End ALS

To reg­is­ter for a Walk to End ALS near you, please visit walks​.alsque​bec​.ca.

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August 23 to 25 – Ride to Fight ALS in Mauricie

Join over a hun­dred cyclists who will be rid­ing to fight ALS. Fun and lots of emo­tions are in store! The courses are acces­si­ble to all cycling levels.

1, 2 or 3-​day options. Come out to l’Auberge Gode­froy in the Mauricie region.

Check out our web­site to reg­is­ter or sup­port a team! ridetofigh​t​als​.ca

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As part of the Ride to Fight ALS cycling event, As part of the cycling event, we invite you to join a Well­ness Day fea­tur­ing out­door and relax­ing activ­i­ties on August 24th at Auberge Gode­froy in sup­port of the ALS Soci­ety of Quebec.

The Well­ness Day includes:

• A peace­ful walk along the Parc écologique Gode­froy (not wheel­chair accessible)

• A 60-​minute yoga ses­sion on the Auberge Godefroy’s ter­race with Clau­dia Gomez

from Yoga 3

• Access to L’Auberge Godefroy’s Espace Aqua-​Détente

• Cock­tail with Ride to Fight ALS participants

Learn more [+]

ALS Soci­ety of Que­bec
This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.
|sla​-que​bec​.ca
5415, rue Paré, bureau 200, Mont-​Royal, Québec, H4P 1P7, Canada

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Last Updated: Thurs­day, 25 July 2019 14:27